Category: frugal

100 Terminally Ill Claimants A Month Die Fighting For Benefits.


It has been revealed by Benefit And Works that more than 100 people a month are dying whilst fighting for an award of PIP even though they have less than six months to live.

A recent report by the Motor Neurone Disease Association and Marie Curie has sadly revealed that in the 18 months between April 2018 and October 2019 1,860 people died within six months of being refused benefits.

One person who is terminally ill reported that her benefits had reduced after being forced to move from DLA to PIP.

She told the Guardian: “The assessor didn’t recognise that I was terminally ill. He didn’t want to see the doctor’s letters, the consultant’s letter or the letter from the hospice. He didn’t want to know. I have Crohn’s disease, osteoporosis, brittle bone disease and intestinal failure.

“I have been receiving end-of-life support from a hospice but had to cancel my other care after the review as I couldn’t afford to pay for it. I was forced to appeal and only then did I receive a higher rate.”

It is also reported that a consultant neurologist was questioned no fewer than three times by Capita about their assessment that a claimant with motor neurone disease was terminally ill.

This has caused huge distress to those concerned at a time when they shouldn’t be forced to worry about the DWP and their financial situation.

This has also delayed any access to much-needed benefits, but not only are they harassing claimants they see fit to also harass consultants thus taking time away from dealing with parents.

Meanwhile the DWP is still delaying any reforms of the rules for terminally ill people for benefits.

Can you imagine how stressful it is for terminally ill people having to fight for their payments and care knowing that they might not ever receive their rightful payments? People are literally dying whilst doing exactly this and still the government blatantly fails to support them.

We must also never forget that everyday terminally ill people are forced to end essential care that they need because of the above reason.

Everyone deserves proper care and dignity but still the government continues to persecute them, but let’s be honest they don’t care and never will because they regard disabled and ill people as deserving of nothing.

We all need to continue this conversation and highlight the seriousness of this. No one deserves to die with this stress and worry. Its inhumane and horrific that this is indeed happening at all.

The DWP needs to stop delaying their delaying tactics and start to actually start making the essential changes to the terminal illness rules but we all know that this isn’t going to happen is it.

Once again huge thanks to Benefit And Works for their hard work revealing this report and making thousands of people aware of the DWP cruelty that appears to be never-ending. They work extremely hard to get the truth out there.

At times like this you’d expect any organisation to be sympathetic and caring but as has been proved time and time again the DWP fails to show even an ounce of care and compassion.

Photo by Alex Green on Pexels.com

As for me, I’ve had a tough week, bereavement isn’t easy especially when you loose a child. My apologies for being quiet this week. I’ve struggled but I’m still here trying to raise awareness.

A huge thanks to everyone that reads, shares and supports my blog. It really has made a huge difference in my life and I cannot thank you all enough.

As usual please read, share and tweet my blog, it makes a huge difference and really raises awareness.

I receive no funding for the work that I do, theres a donate button at the top and side of this blog post for anyone that would like to donate or even buy me a coffee. Thank you!

Disabled people excluded and marginalised during pandemic new report finds.

Research led by Inclusion London reveals that the COVID-19 crisis has impacted thousands of disabled people.

As reported by Disability News Service who have seen a draft version of an interim report based on the research titled Abandoned, Forgotten and Ignored.

The report conducted by Inclusion London is based upon more than 300 online survey responses from across England including a small number of people living in Scotland and Wales.

The report concludes that “Despite the government’s rhetoric about protecting and supporting Disabled people, the reality is that they have been treated less fairly and discriminated against across all areas of their lives.”

The report also warns that many disabled people most affected by the pandemic will not have had access to its online survey resulting in the findings of the report likely to represent only “the tip of the iceberg” due to lack of access to the internet for many disabled people.

Inclusion London have reported that disabled people have been suffering from increasing levels official isolation, mental distress, lack of decent if any care and support during the pandemic, also finding that there has been difficulty for many to access food and also difficulties accessing healthcare such as prescriptions and suchlike.

The report discloses that the actions of central government, local authorities and service-providers have continued to fail exclude and marginalise disabled people which in turn has resulted in discrimination.

It also finds that disabled people in high-risk groups have been unable to obtain personal protective equipment (PPE), and have also had had their vital care packages cut and important social care assessments delayed.

Indeed it reports that a quarter of the people that have responded that receive direct payments for their care were left unaided to cope with staff issues and sourcing their own PPE.

One disabled person responding said of their experience “My care agency are not getting adequate PPE, and they are so short-staffed at present that I’ve been lucky to get a shower once a month (and cannot have a strip wash at all due to them sending male care workers to me eight times out of 10 instead of female), and am not getting one in three of my daily care calls.”

More than three-fifths of people that responded to the survey said they had struggled to access food, medicine, and other necessities.

Respondents described how supermarkets had refused to make reasonable adjustments for them when they tried to shop in-store and how they were unable to order home deliveries.

Many have not received the support they vitally need to prepare meals for themselves also, this resulting in being forced to spend more money on food by having to shop in more expensive stores or having to order their meals online.

More than a third of those surveyed spoke of increasing levels of mental distress during the pandemic.

One respondent saying that they had been inside their home for three-and-a-half weeks without going out resulting in them feeling that they were losing their mind, going on to say that have a pre-existing mental health condition, and it is causing a big relapse.“I feel trapped and controlled and claustrophobic.

This had left them too scared to leave the house because if they get sick that they knew that, as someone with pre-existing conditions the doctors will leave them to die in favour of someone who has a better chance of surviving.

Several people that responded to the survey also said they had been asked to agree to having ‘do not attempt resuscitation’ orders placed in their medical records. Others told they would not be admitted to hospital if they fell ill or would be denied life-saving emergency treatment.

One person responding said: “I can’t access the government scheme for support because apparently I’m not disabled enough.“However I’m disabled enough to get suggested to sign DNR [Do Not Resuscitate], and inferred I’d be left to die if hospitalised.”

Inclusion London concluded the report by warning that there will be a much higher demand for advice and support from disabled people after the lockdown is lifted. This leaves many organisations needing to increase their funding to provide these essential services.

Its a terrible indictment upon the government that disabled people have had to resort to legal action because of the discrimination that they have faced from the government.

This report has reinforced the view that the government and society looks upon disabled people as a burden on the state and are second class citizens.

It is very disturbing however not surprising that disabled people have been treated in this manner throughout the pandemic. The government clearly regards them as unimportant and not deserving of any quality of life, which to be honest is very clear to see. We cannot allow this inhumane treatment of the most vulnerable in society to continue.

Photo by Kindel Media on Pexels.com

For sources of information and support during the coronavirus crisis, visit the DNS advice and information page18 June 2020 over at http://www.disabilitynewsservice.com

Sources http://www.disabilitynewsservice.com

Inclusion London https://inclusionlondon.org.uk

Please read, share, tweet and email my blog. Every share really makes a difference to get the truth out there, which is extremely important at the moment.

I receive no payment for any of the work that I do, I’m trying to improve my content and to increase the amount of blogs that I publish each week.

Along with the death of my son I’m finding things really difficult at the moment.

For anyone that would like to donate to keep both my blog and campaign going theres a donate button at the top and side of this blog.

A huge thank you to everyone that does and has supported my blog and campaign, it really does mean the world to me and it keeps me going.

Face to face assessments to return for PIP and WCA claimants.

Last month the DWP minister Justin Tomlinson informed the Commons Work and Pensions committee in parliament that face to face ‘interviews’ are set to return although he stated that some telephone and video assessments will still continue.

There has been no concern from Tomlinson about the safety of vulnerable claimants and the fact that there is still a pandemic and most people forced to attend these ‘assessments’ are indeed vulnerable and are still having to shield.

Tomlinson however claimed rather confusingly that they had ‘Lost all of their health professionals’ because they apparently have gone to work for the test and trace system instead.

It isn’t clear yet how the system is going to return to normality when, as he said the health professionals that were employed have now left. Maybe Tomlinson will pay them even more money to do this, therefore tempting them away from their current employment. Who knows, I expect we will find out sooner rather than later.

It does however take a particularly cruel mindset to conduct these ‘assessments’ and to declare vulnerable people fit for work when they clearly aren’t.

Tomlinson went on to say that the work capability assessments (WCA) will begin shortly and PIP (Personal Independent Payment) ‘assessments’ will follow a few weeks later although they will keep video and telephone assessments. Tomlinson wasn’t clear in what capacity this will be, clarity isn’t his or the Tory party’s strong point.

As I write this I expect many people will have had their much dreaded letter from the DWP regarding their assessment, thus causing distress and panic for already vulnerable people.

Whilst the Covid 19 vaccination programme is going well there are people that are unable to have the vaccinations for health reasons. The Covid 19 strain from India has now started to take a hold in the UK, putting thousands at risk.

I urge Tomlinson and the government to rethink their assessment strategy and to put the health and well-being of disabled and vulnerable people first.

Photo by Kat Jayne on Pexels.com

Once again thanks to Benefits and Work for their hard work in researching this and publishing this information. You can find them over at http://www.benefitsandwork.co.uk

WCA is the Work Capability Assessment and PIP is Personal Independence Payments.

I don’t receive any funding for the work that I do and for my campaign.

Please help me to continue to do this, there’s a donate button at the top and side of this blog.

A huge thank you to everyone that reads, shares and tweets my blog. It makes a massive difference and it helps to raise awareness.

PIP AWARDS FALL TO ALL TIME LOW.

It appears that the DWP are back to their old tricks again. The pandemic isn’t even over yet they continue with their obvious discrimination against disabled people.

Theres nothing that the government and the DWP appear to enjoy more than target vulnerable people with impossible targets to meet and to basically make their lives ask difficult as possible.

You might remember that a recent court hearing that the DWP had been wrongly using the law in relation to PIP mobility based on mental health grounds. (Personal Independence Payments)

The DWP although not admitting any wrongdoing, they did say that this would result in an increase of approximately 14% of the PIP mobility component. You can bet that they didn’t like that.

Meanwhile the brilliant team over at Benefits And Work have looked at the figures for claimants that claim PIP for anxiety and depression, this being listed as being the most likely to be affected by the court ruling.

They discovered that immediately after the DWP started implementing the new ruling, the award rates for mobility for depression and anxiety rose quite dramatically rising from 14% to up to 25% .

As if by some cruel feat of magic, the PIP award rates started to fall again, resulting in an all time low which is now far greater than before the court ruling.

Once again the DWP had most likely thought that they could ignore the ruling, thinking that no one would notice their deception. After all it’s easy to target the most vulnerable and the people that will find it extremely hard to fight back.

It’s very easy for the DWP to do this though, indeed it’s taken them just over a year to achieve this gross injustice.

They know that they can ignore court rulings because they’re accountable to no one. Knowing that this will result in the suffering of so many people they continue not caring and denying people their rightful payment awards.

Whilst the pandemic had opened up lots more access to online meetings and events, those without the internet cannot access help this way. Can you imagine being awarded such a meagre amount of money that leaves you unable to leave your home? Unable to pay or find internet access?

It’s cruelty beyond belief, and I don’t for one minute doubt that the DWP know exactly what they’re doing.

At a time when society should be helping each other the DWP decided to make disabled peoples lives even harder, which is no surprise and they will continue until they’re physically out of government.

What can we do to help each other? We can give help, advice and solidarity to anyone that we know that needs it. This makes a world of difference. I will continue to campaign against the ugly DWP machine and the government for as long as I am able to.

A huge thank you to Benefits And Work for all the hard work that they do. If you haven’t checked them out yet `I urge you to because they’re amazing!

https://www.benefitsandwork.co.uk/about-us

Please read, share, tweet and email my blog posts. Every share really helps to raise awareness which in turn helps people. We need to get the truth out there.

A huge thank you to everyone that supports my blog and campaign. I’m slowly trying to get back to a new normal for me. Loosing my son has devastated me, but as a disabled person himself he would want me to continue to fight for fairness and equality for all.

I don’t receive any funding for either my blog and campaign. Theres a donate button at the top and side of this blog post.

A huge thank you to everyone that supports my work and a massive thank you to everyone that has supported me and shown me kindness throughout this awful time.

Let the bodies pile high says Johnson

Yesterday was quite a busy day for Dominic Cummings the former chief aide whilst he gave evidence in a seven hour hearing regarding the governments handling of the Covid 19 pandemic.

Cummings particulally took aim at Boris Johnson and Matt Hancock, depicting the chaos and failing of the government’s handling of the Covid 19 crisis, saying that the failure, incompetence at the top of government stating that Covid 19 had killed thousands that didn’t need to die.

Whilst many people had already realised that Prime Minister Johnson anti lockdown, ignored scientists advice and failed to introduce lockdowns in adequate time. This is the same prime minister that openly said that he didn’t care about people dying, saying ‘Let the bodies pile high’.

For myself and others it comes as no shock. Johnson and his ilk have no sympathy or care for working class people, even less sympathy is given to disabled and elderly people, you can see this in their policies and their attitude.

What people need to realise is that Johnson and co come from and live in a totally different world than most people. They come from a place of great privilege and they like to flaunt this whenever possible.

Their handling of the pandemic is a good example of this. for example whilst thousands of people were dying, Carrie Symonds, Johnsons girlfriend was shown to be more concerned about her dog than the pandemic and the death toll. Symonds also saw this as a perfect opportunity to try and find her friends jobs within the government.

Johnson knew exactly what he was doing though, he was warned by officials that a lockdown was needed but failed to act, taking him a further ten days to agree to a lockdown.

There was no plan for the government to use in the event of a pandemic, despite many in government believing that there was. This has undoubtedly has resulted in thousands of deaths. Ironically a plan had been created by the Labour Party which would have undoubtably helped thousands of people and would have prevented thousands of deaths.

Johnson also described Covid 19 as ‘the swine flu’ and stated that he was going to get Chris Whitty to inject him with Covid 19 live on television to prove that its nothing to be scared of.

Mark Sedwill the then Cabinet Secretary suggested that people should have Covid 19 parties like chicken pox parties, believing that herd immunity would then be reached by September. Meanwhile the government were drawing on a whiteboard asking who they can’t save with no regard for their safety nor regard for them at all.

Its very clear that the government doesn’t care and never will care. We only have to look at the way that the government treats disabled and working class people. Their policies have resulted in the deaths thousands before the pandemic and not one care has been given about this either.

It is completely normal for the government to treat people like this, we mean nothing to them. If they can’t make any use of us financially through exploitation such as their Workfare schemes, they punish people by making it extremely hard to claim benefits such as Universal Credit, ESA and PIP.

Such cruelty will continue for as long as they’re able to do so, with no effective opposition at the moment I can see such cruelty continuing for a long time to come.

Please read, share, tweet and email my blog. Every share helps to get the truth out there.

I would like to thank you all for your patience, especially after my son’s death. I’m trying to get back to normal, whatever my new normal is now.

I’m aiming to get at least one blog post published every week, hopefully improving the quality of them along the way.

I also receive no funding for my blog or my campaign. Every penny counts and it will help a great deal.

A huge thank you to everyone that shares and supports my blog and campaign. It means the world to me and has kept me going during such dark times.

Let’s talk about Covid deaths.

Dear readers, subscribers and friends, I hope that you are as well as can be. This week has been difficult for me because it’s the first time that I’ve been able to sit down and grieve for my son.

Everyone grieves in their own way and the time it takes for a person to grieve is totally individual. I truly don’t think that I’ll ever get over it and I’ll just learn to live with it.

It’s heartbreaking to know that thousands of people are mourning the loss of a loved one to Covid 19. No one as far as I’ve seen has spoken about their suffering and loss. I cannot comprehend their grief and pain.

The government has done a good job of hiding the true reality of the pandemic, the deaths, suffering, long covid sufferers and those already isolated because of illness and disability.

It’s very easy for the Prime Minister to open the borders, allow travel to countries overseas and to open up shops and businesses, he doesn’t have to cope with becoming ill and having no support, to be isolated in his home due to disability and illness. As most of you already know that he doesn’t care, he doesn’t care about our welfare and he certainly doesn’t want to improve our quality of life.

I don’t underestimate the joy felt by many when they realised that they could come out of lockdown but I do realise that the Indian strain of covid 19 will soon be in most of our communities because Johnson once again hasn’t put much, if any thought into ending the lockdown.

Like many of you reading this I’m fully vaccinated, and many will be awaiting either their first or second vaccination, but I’m a tad worried about the Indian strain coming our way because we just don’t know if the vaccination works with this strain of COVID 19.

What I can say is proceed with caution, wear a mask, wash your hands and remain cautious. It’s a terrible indictment of our government that Johnson thinks that its ok to say ‘Let the bodies pile up’ and still be allowed to continue as Prime Minister. I remember the days when the opposition used to oppose such wrongdoings but now there’s hardly any from Sir Kier Starmer.

I really hope that we start to have some decent opposition soon because thousands of people need this now.

Please read, share, tweet and email my blog. Every share is important to get the truth out there.

I don’t receive any funding for both my blog and campaign. For anyone that would like to donate there’s a donate button at the top and side of this blog.

Thank you all so much for your support, it means the world to me.

Funerals a cost too high for many.

Hi everyone as you may already know I recently had the terrible news that my son had died. It’s every parents nightmare because no parent expects to outlive their children.

My sons death was totally unexpected, he was a caring young man, loved by many. He didn’t take drugs or drank excessively either.

When I first heard the news as well as grieving, I was also extremely worried about how I could afford to pay for a decent funeral for him. I felt that this was important because he was only 26 years old and his sisters and family will be around for a long time to mourn his death.

Before my sons death I already knew that the funeral grant offered by the DWP wasn’t enough to give anyone a really decent funeral, it just pays for the very basics and anyway not everyone is entitled to it as I found out.

Call me old fashioned but I believe that everyone deserves a decent funeral. Funerals are expensive to start off with, and I can imagine how heartbreaking it must be to not be able to have a decent funeral for their loved ones.

It was pointed out to me that I could have had a direct cremation for my son because they cost less. Sadly because of my own beliefs I couldn’t do this for my son. Every deceased person deserves to have a proper funeral service if they wanted this. Personally I believe that it’s important for the deceased persons soul to have a proper funeral, to give them peace as well as the family closure.

The government however don’t regard this as being important. I’m positive that there are many deceased people left in storage and cremated because their families can’t afford a funeral. No one should be left like this. I’m surprised that the government haven’t reintroduced mass graves or likewise for the poor to be buried or cremated and their ashes scattered.

Yet still most politicians talk about this subject, whilst they’ll have no problem paying for a funeral the majority of us can’t and nor can we afford to pay for a prepaid funeral either. It’s a sad indictment of how little the Tory party regard life and death. They don’t care and neither will they ever care.

The welfare state was created to care for us from the cradle to the grave but the government has taken so much away from it that it hardly supports us anymore.

I could only afford a decent funeral for my son because of the kindness of friends and followers on here, Twitter and Facebook. I really can’t thank you enough and I couldn’t have done it without your support and kindness and both myself and my family can’t thank you enough for your kindness.

I will continue to speak out about this, because I do believe that its important and I make no apology for doing so.

Please read, share, tweet and email my blog.

If anyone would like to donate to either the upkeep of my blog or campaign there’s a donate button at the top and side of this blog post.

A huge thank you to everyone that has and does support my blog and campaign. I really couldn’t do this without you.

I’m still here.

Dear friends, subscribers and everyone that reads my blog.

As you know my son died unexpectedly and I’ve been away arranging his funeral and everything that goes with that. His sisters are distraught and its horrible to see them crying and grieving.

Sadly a cause of death hasn’t been asertained as there were no obvious causes, he didn’t take drugs or drink heavily and he didn’t take his own life, he fell asleep and didn’t wake up.

Because there isn’t an obvious cause of death there will be an inquest in October but I’ve been warned that I may never find out way. So many young adults die like this but it’s hardly spoken about.

As for me I’m trying to cope with my grief and the loss of my only son. Joseph was an amazing young man and he was loved and missed by so many people.

I will hopefully be able to update the blog this week, it’ll do me good and it will be a big distraction for me.

I’ll see you on Thursday with an updated blog.

Thanks for your patience

Charlotte.

No blog update this week. .

Dear readers and subscribers, I’m very sorry but there’s not going to be a blog post this week.

I was told that my son had died on Friday and I’m trying to deal with it and organise his funeral etc.

I will be writing a new blog post as soon as I’m able.

There is a crowdfunding page relating to this on both my Facebook and Twitter account.

Thank you , solidarity Charlotte.

I’ve had enough. My long Covid nightmare continues.

Dear readers and subscribers, you I get have realised that Ive been pretty much out of action this past week. I apologise for this, I feel awful about it and I hope that it doesn’t happen again.

Ive been struggling to get through this last rebound due to needing more meds and waiting for them to be processed.

I’ll be honest with you, I’m feeling pretty low at the moment. This past year has been a complete nightmare and so far it doesn’t appear to be easing.

My health is pretty rubbish at the moment, it takes me much longer to do tasks that I didn’t used to think about. My daughters more than fed up with me being ill and I do feel like I am to blame for this. Being a single parent is tough when you’re ill.

Yesterday I learnt that the support that I was getting will be ending next week. This was very difficult for me to process because I’m still needing help.

Ive noticed that many essential support networks and general support services locally are ending next week because apparently everything’s going back to normal.

It’s rather foolish to believe that because this latest lockdown is ending that Covid 19 has ended as well. So many people are still ill with it and are suffering from long covid.

It’s very neglectful of any support network to believe that this latest lockdown ending is the last lockdown that we are going to have.

Already the numbers of children that are infected with covid 19 are rising along with the schools re opening. Combine this with the majority of the population have only had one vaccination leaving others still waiting for their vaccination dates it arrive.

Not long ago Boris Johnson declared that we would ‘have to get used to people dying’. I for one can never get used to that. He should never have uttered those words.

To be honest the only things that have been keeping me going recently are this blog and your support. I need your support more than I ever have before.

I want to be better, maybe these latest meds will work. I don’t want to be in the position that I’m in now. It’s pretty dire tbh and I expect that thousands of other people are feeling the same as I am now.

If any organisations are reading this blog post, please reconsider stopping support just because the latest lockdown is ending. So may of us are, not by choice dependent upon this help.

I feel that Ive been totally honest with you, I needed to get this worry off my chest so to speak and I want people to realise how tough it is for long covid survivors.

One day, hopefully soon this nightmare will be over and I’ll be back to my normal self. It’s been so long since I’ve been there.

Please read, share and tweet my blog. I really want to get the reality of our situations out there for everyone to read.

For anyone that would like to donate to keep both my blog, myself and the campaign going theres a donate button at the top and bottom of this blog post.

I really need your support and I thank everyone that does and has supported my blog and campaign.

Thank you.