I’m struggling…

Dear readers this week’s blog is going to be rather short and I apologize for this.

The other week my daughter brought a virus home from school. This in itself wouldn’t be problematic but combine this with my long covid and respitory problems because of this it’s been a nightmare.

I was prescribed some meds which have worked to an extent but I still feel terrible. As a result it’s impacted my life dramatically this week and all that I’ve been able to do is nothing. A flat nothing except essential tasks.

I know that I should probably go back to the hospital but I’m putting it off because they’ve got much sicker people than me to deal with.

The reality is that long covid sufferers like myself are left to it with very little or no support. If you haven’t been admitted to hospital then it’s extremely hard to get someone to listen and to help you.

Unluckily I was admitted to hospital so I have been able to access some very basic tests and have been allocated a respiratory specialist that I’m still waiting to see.

I’ve tried all of the alternative remedies out there and none of them work. Some slightly ease the symptoms but the only things that really work are time, antibiotics for any infection lurking and a nebuliser on bad days.

To access any of these you either have to have access to a decent doctor and a local hospital. By decent I mean a doctor that actually recognises that long covid and related problems are an actual thing.

This sadly isn’t as easy as you might think. Often when you get covid 19 you also can get some really strange symptoms that there’s no explanation for.

My strange symptoms have been high temperature but not skyrocketing high, hallucinations in the early stages, really strange aches and pains, fatigue, breathlessness and a crappy immune system that can be set off by the slightest thing.

When the decision to have another so called lockdown not once were people with illnesses, disabilities and long covid taken into account.

The government shuts pubs, restaurants, gyms etc but they refuse to shut the schools, colleges and universities.

It’s a total misconception that children are being adequately socially distanced. The covid 19 and other viruses are running through these establishments at a high rate. This then returns home with the pupils, teachers, teaching staff and school staff and is passed onto any person living with them.

It’s extremely dangerous but so many people are failing to see this. We aren’t even an afterthought we aren’t thought of at all.

It’s also extremely frustrating to see that so many people in my area at least don’t believe that this virus exists or if it does it’s not harmful.

It’s all a conspiracy they say, wearing a mask takes away our freedom! They fail to see that wearing a mask actually does help to give them the freedom that they crave.

Then we have the news of a vaccine that’s on the way. It’s supposedly around 90% effective and it should be welcomed. But it isn’t by many.

Like anything new it’s ok to be suspicious but this vaccination has been tested adequately. I can’t however comment on any side effects but to be honest I’d give anything to feel well again.

Whilst the schools etc are still open the virus will still be spread amongst our communities. Add into this the people that refuse to wear a mask etc and so many more people are going to become ill or much worse die.

This week saw the death total for UK hit 50 thousand. Yes these people died from Covid 19 related illnesses but people still insult the dead and their families by saying that its all a lie.

It isn’t a lie, people are dying and they need to take this seriously.

I’m sorry for repeating myself again but people do need to hear this. It’s extremely important.

As for me, I’ve not been able to go out anywhere except for my local post office which isn’t far.

I struggle walking there and back, breathing isn’t easy when your mobile but it is what it is.

I wear a mask whenever I do go to the post office and I’m very strict about using anti bacterial hand creams etc.

I stay away from any crowds of people because I realize the risk of catching something else.

I’m not contagious anymore but so many people are vulnerable and we all need to look after each other.

What I do want is a proper lockdown with the full support of the government for workers and self employed people.

I want people to realise that long covid is a serious thing as is having a weakened immune system thanks to covid 19.

I want people to realise that we don’t get well overnight. It takes a long time and its a struggle to do so.

For some catching covid 19 is the only way that they’ll start to realise how awful it is.

As for the vaccine. It’s going to take quite a while for it to be rolled out to the general public. It’s being offered to vulnerable groups of people first and quiet rightly so.

Please don’t become complacent because a vaccine is on the way.

Please keep safe. I know that as a single parent it’s doubly hard to do so but it’s so important.

Continue to look out for each other, help and support each other.

I’m going to end this blog here but please know that you’re all in my thoughts.

Please read, share and tweet my blog.

A huge thank you to all of you that do this already.

There’s a donate button at the top and side of this blog. I receive no funding for anything that I do. Every penny helps me to continue with my blog and campaign.

A massive thank you to everyone that has and does support my blog and campaign. Your support means the world to me.

5 thoughts on “I’m struggling…”

  1. So aorry to hear about your long covid. I haven’t been looking at WordPress for months now, so didnt know you had been unwell, and I really hope you make a full recovery, however long it takes. I too seem to have the long covid so I can guarantee that while eveyones symotoms are different, we all are struggling badly. We need far more support both from the medics AND social care and support. I have managed to keep on running our food support group which sends weekly foid parcels to anyone in need of foid support. They contain fresh foods rich in Vit D and C.

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  2. Thank you Charlotte for taking the trouble to write this. I feel for you and agree with you about the schools. Personally at 66 and with a myriad of ailments already, catching it would be the last straw for me I think. So I haven’t see my grandchildren since March and had very little contact with other family – they all seem to be far more laid back about adhering to the rules and think I’m being over-cautious but I daren’t risk it. None of them live alone like I do and so don’t appreciate the seriousness of catching it and there being no-one else in the household to monitor you or to call the doctor, ambulance etc if you were to deteriorate suddenly. Long Covid sounds horrendous. I wish you well.

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