My 5th Covid 19 rebound. We need to talk more about long term covid 19 sufferers.

Dear readers it’s Thursday and I hope that you are all OK and as well as you can be.
Sadly I’ve rebounded again and I’m now on another course of antibiotics which I’ll be taking for the next seven days.
Sadly I’ve not been fit enough to do much and this week. I have been busy online and trying to do what I can.

The housing association that I rent my house from have decided to resume the work to fit a new kitchen so we’ve had to clear everything out of there.
We are now living in our small downstairs living room which is packed full of stuff from the kitchen.

I am very happy that they’ve decided to do this work because I’ve been waiting for 13 years for them to do this.
I am however too ill to appreciate it as much as I should.

Being a long term covid 19 sufferer is awful, it feels like it’s never ending. One minute you’re feeling on top of the world, that you’ve beaten it and all is good.
The next minute it comes straight back like a big cloud that’s raining heavily.
In my case it’s hit my chest the worst, this isn’t the same for everyone though. Friends that are also long term sufferers have a variety of symptoms ranging from exhaustion, headaches, pains in their limbs and joints, their eyes have been affected the list goes on and on.

Not enough people are talking about long term covid 19 sufferers like myself.
Andrew Gwynne MP is a fellow long termer and he published a really good article about his experiences of this awful virus and the long term affects

I’m sure that my friends and family are fed up with me being ill now but I really can’t help it. If I had a magic wand I would magic it away.

I am missing my old life, taking my daughter out, seeing friends, taking the dog for a decent walk and eating treats like chocolate etc etc.

I do realise that I’m luckier than so many people that didn’t survive Covid 19. Their families must be devastated.

What does make me angry though is the people that claim that Covid 19 is made up, it doesn’t exist, that it’s a lie and is some kind of joke.

Personally this makes me feel sicker than I do now. What gives them the right to belittle the suffering and deaths of so many?

What I do know is that if these people catch it they’ll be the first to demand the help of OUR NHS, our doctors, nurses, nursing assistants and support services.
Please don’t insult us with these lies, instead listen to us and try to understand how we are feeling. It isn’t hard to do.

Luckily my doctors surgery is doing telephone consultations but if you don’t have a phone or credit how are you supposed to get in touch with your doctor for help?
If a person doesn’t have any Internet either then it’s impossible. I really worry about everyone in this situation.

Yesterday I had to collect my meds. I wore my mask, kept away from people and used hand sanitizer like it was going out of fashion.

Whilst I was out I couldn’t help but notice the large amount of people walking around without wearing a mask. I’m positive that the death rates will rise as a result of this.

Covid 19 is still here folks, it hasn’t ended and so far there’s no sign of an end to it.

I’m trying to keep positive though although it’s not easy. Facebook memories from our days out keep popping up. My daughter deserves better than this.

I’m missing so much but I’m grateful for so much also. I’m getting used to living from food parcels, at least I have them. I am missing my treats though.

It’s a big culture shock though and it takes time to adapt to it. I do miss shopping though but it is what it is isn’t it.

What has helped me enormously is your support and help and the solidarity from other long term covid 19 sufferers. We all know what it’s like to feel like this.

My art has also kept me going, and I’ve been so lucky in getting help with this. It’s a good distraction and I get a good sense of actually achieving something.

What I do worry about though is how are people going to return to work, that’s if they have a job and are a long term covid sufferer? Personally and would find it impossible at the moment.

There is very little support for us out there but we do have each other and that’s something.

This week has been a bit of a blur and I make no apology for how I feel.

I want to send my love and solidarity to my good friend Keith Lindsey Cameron. He’s a good friend of mine and he’s been ill.
If you havent seen his work yet then have a look he’s an amazing campaigner.

I’m going to end it here because I’m knackered but take this message with you.

Let’s talk about everyone suffering from Covid 19 and the long term sufferers. Let’s keep reminding the government that people are still dying because they want people to forget about this.


One of my paintings.


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Lots of love to you all xxx.

7 thoughts on “My 5th Covid 19 rebound. We need to talk more about long term covid 19 sufferers.”

  1. Hi Charlotte I enjoy reading your blog. I’m poor too as a result of early disability retirement on esa but hey ho we just get on with it don’t we?
    I have sent £5 twice as it wouldn’t let me change to £10. At least ONE of the fivers is for chocolate, biscuits, whatever treats you want no arguing that’s what that is for dear god if I didn’t have my magnum type lolly after dinner I should think myself hard done by indeed. I’m not sure why I just started talking like Jane Austen.
    Lastly – I’m hearing many stories of long term covid and you know, probably last thing you want to hear but I can see parallels with ME/Fibromyalgia which I am a long term (11 years) survivor of 😢. I had swine flu in 2009 and never really recovered. OTOH I had a hernia repair with the now-controversial mesh same year, and my mum died after being knocked down by a car, and I got infected bites which may or may not have been Lyme disease – oh who the fuck knows or even cares now 🤷🏻‍♀️. It happened. Best advice for chance of total recovery is rest, rest, rest. Do not force self to do stuff – housework be pointless now anyway with builders in. I hope I’m wrong about the ME thing 😢. Stay safe and enjoy the chocolate – I will be checking up you didn’t buy anything more worthy 🤣🤣🤣🤣
    Love Bella

    Liked by 1 person

      1. Yeah I guess but I’ve adapted to it now and I still have s good life although I do get frustrated not being able to do all I want 🤷🏻‍♀️
        And I no longer give a flying fart about the people who don’t ‘believe’ in ME etc. They’re not affecting my life are they? They can just do one 🤣🤣🤣🤣

        Like

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